Ontario Renal Network | Reseau Renal de L'Ontario

Volunteer Opportunities for Patients and Families

ORN | Ontario Renal Network » Info for Patients » Volunteer Opportunities for Patients and Families

Have you ever wondered how you might use your experiences to help kidney patients and their families? Whether you have been living with kidney disease for years or are a new patient, family member or caregiver, we have Patient and Family Advisor opportunities that may be right for you.

The Patient and Family Advisor Role

Our community of Patient and Family Advisors is made up of people living across the province. They come from a diverse range of ages, backgrounds and experiences in Ontario’s kidney care system, having experienced the kidney care system as patients receiving kidney care or as caregivers to patients. Patient Experience Group PictureBy sharing their unique perspectives and experiences, advisors help us improve the lives of people living with chronic kidney disease.

Advisors volunteer to work with our staff and provide direct input into the design, delivery and evaluation of policies, programs and initiatives that affect patient care. We frequently seek their advice when we need to understand the patient, family and caregiver experience to advance the goals of the Ontario Renal Plan.

Patients and families are at the centre of everything we do.

How You Can Contribute

As an advisor, you would provide a valuable contribution to our programs and initiatives, such as:

  • joining provincial program committees, working groups and focus groups, including the Patient and Family Advisory Council
  • taking on one-time engagements, such as speaking publicly about living with kidney disease, or reviewing patient-facing surveys

Patient and Family Advisory Council (PFAC)

This group of dedicated and dynamic individuals – patients, family members and caregivers – represents a range of experiences with the kidney care system. The council provides a forum for patients, family members and caregivers to advise on our initiatives as outlined in the Ontario Renal Plan. Council members share their experiences of living with kidney disease to make sure that their voices are represented in the design, delivery and evaluation of Ontario’s kidney care system. 

Cancer Care Ontario (including the Ontario Renal Network), may collect your personal information for the purposes of responding to your inquiry and administering the Engagement Program. This information will not be shared with third parties and will not be used for any other purpose. If you have any questions about your information and how it is managed by Cancer Care Ontario, please contact us at the email below.

If you are interested in becoming a Patient and Family Advisor for the Ontario Renal Network, please email us at pfa@renalnetwork.on.ca.

How You Can Help in Your Own Community

Most of Ontario's Regional Renal Programs have volunteer opportunities for patients, family members and caregivers, including:

  • local Patient and Family Advisory Councils
  • peer support programs
  • peer mentoring programs

Ask a social worker at your next kidney care visit how you can get involved.

Real People’s Stories about Living with Kidney Disease

Patient Experience Video Series

Our Patient and Family Advisors and their family members tell it like it is in this series of personal stories covering what it is like to live with kidney disease.

View Video Series:

Patient and Family Experience Videos Series